18 months old!

Lil man is now 18 months. Tomorrow we go to neuro appt to get the muscle biopsy results. I've been o~so patiently waiting for, I'm hopeful we will get some answers, but not holding my breath..
I'm very proud to say that in the past few weeks Gabriel has learned a few more "tricks" lol. He now can wave bye or hi, shake his head no in response to someone saying no or if he's not happy, aaannnnddd (drum roll please!) He is beging to move in his gait trainer, only backwards, but I'll take that!

Also on our adgenda tomorrow is a video swallow.. I don't think much has changed since the last one 9m ago (were 3 months late), been a bit busy.

List of things I need to do~ make appt with eye dr, to see if he has vision problems that's why he keeps his head cocked to the side and is scared of round things. Get him into the wheelchair clinic at shriners. Find out more about the happy mealtime program at all childrens and see if its something we should do..

Got my plate full as usual, I'll update tomorrow hopefully with some answers.

18 months!

Today my little Gabby is 18 months, he's come a long way. Just yesterday he started to learn how to go backwards in his gait trainer, I should have got a video, he went about 10 feet! So he is really starting to understand that he can move his body to do things he wants. Now when he rolls he is starting to lift his head up when hes on his side to see whats going on. He still hates to be on his stomach though. He is working on prop sitting, but fights it too much, I know he has the streignth but he just pushs back and falls.
Were still waiting on the muscle biopsy results.. Not much to say about that but just that im so frustrated at waiting forever for test results. But the site healed up nicely, so thats a big plus.
On the down side, Gabriel has been sick the past week. The older kids caught a bug and then he got it. Started with vomiting then diarhhea, now its moving to his chest, and has a gunky cough and runny nose. He hasnt had any respiratory problems since he had pneumonia in early dec 10. Ive been told by the pulmonologist that he has a floppy air way and if he gets any respiratory illness we should watch him close. So that is what I will do. The cough started today, so I hope it wont get much worse. Hes been happy today, just still not eating as much as he should, and not even able to digest what he should take in. He's still spitting up quite a bit.. But keeping clear liquids down via gtube..
Hopefully I will have better news on my next post..

Busch gardens

This is  the first time Gabby went to busch gardens. I want to include him with the other kids but sometimes it can be very difficult. His sensory issues really stress him out. All the loud noises today kept him pretty upset, he cried a lot and trashed his body too. The costers and music were very loud. Also the train ride around the park, he freaked everytime the announcer would say something over the speaker, which was like every 2 seconds. He did ok with the water area. I sat him wth me on the ground by a water spout, he let me put his feet in and he didn't cry. 
I think next time we go we will put ear plugs in his ears or headphones like in therapy, to dround out all the sound.
But my lil man did manage to take a long nap with al the noise.
One funny thing that happened is a man walking by seen gabriel sleeping in the stroller, and noticed the scar on his leg. (Gabriel was wearing a t-shirt and diaper, this is after we played in the water) and he asked if he was having a mitochondrial test. I said yes that this is the scar from his biopsy a wek and a half ago. I said how did you know? He told me his daughter had the same test when she was about 5 months old, she is now 8yrs old, and looked like an adverage kid. He told me his daughter didn't sit until 2 yrs old and walked around 4yrs. He also said all the blood work that was done on his daughter was normal, the biopsy is what gave them the diagnosis. He told me they live in atlanta Ga, and they have the nations best mitochondral dr there. I feel very encouraged to think that maybe one day Gabriel will be able to walk and make progress. I think its so neat how someone can look at a babys leg, see a scar, and they remember what they went through with there own child, and are open to talking with a complete stranger... I hate for anyone to have to go through difficult times with there child, and id be lying if I said I never say "why me" every once in a while, but I do find comfort in knowing I'm not alone, and I do feel very fortunate I have such a beautiful family and friends...