Sunday, April 3, 2011

Busch gardens

This is  the first time Gabby went to busch gardens. I want to include him with the other kids but sometimes it can be very difficult. His sensory issues really stress him out. All the loud noises today kept him pretty upset, he cried a lot and trashed his body too. The costers and music were very loud. Also the train ride around the park, he freaked everytime the announcer would say something over the speaker, which was like every 2 seconds. He did ok with the water area. I sat him wth me on the ground by a water spout, he let me put his feet in and he didn't cry. 
I think next time we go we will put ear plugs in his ears or headphones like in therapy, to dround out all the sound.
But my lil man did manage to take a long nap with al the noise.
One funny thing that happened is a man walking by seen gabriel sleeping in the stroller, and noticed the scar on his leg. (Gabriel was wearing a t-shirt and diaper, this is after we played in the water) and he asked if he was having a mitochondrial test. I said yes that this is the scar from his biopsy a wek and a half ago. I said how did you know? He told me his daughter had the same test when she was about 5 months old, she is now 8yrs old, and looked like an adverage kid. He told me his daughter didn't sit until 2 yrs old and walked around 4yrs. He also said all the blood work that was done on his daughter was normal, the biopsy is what gave them the diagnosis. He told me they live in atlanta Ga, and they have the nations best mitochondral dr there. I feel very encouraged to think that maybe one day Gabriel will be able to walk and make progress. I think its so neat how someone can look at a babys leg, see a scar, and they remember what they went through with there own child, and are open to talking with a complete stranger... I hate for anyone to have to go through difficult times with there child, and id be lying if I said I never say "why me" every once in a while, but I do find comfort in knowing I'm not alone, and I do feel very fortunate I have such a beautiful family and friends...



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